Data Sharing Through Dashboards: The Who, What, Where, When, and Why

Presented April 26, 2019.

Description: Join us for this lightning talk webinar experience where you will see multiple examples of data dashboards and learn more about who they were created for, how they were developed, where and when the data is being shared, and what impact the dashboard has had on improving public health practice. We will hear from 5 presenters from around the public health community as they discuss their work on opioid, flu, and general disease surveillance dashboards.

Presenters addressed the following questions:

April 30, 2019

Lessons Learned from a DoD and Virginia Data Sharing Pilot using NSSP ESSENCE

The DoD and VDH both maintain local ESSENCE installations to monitor the health status of their military and civilian populations, respectively, and submit syndromic surveillance data to the NSSP ESSENCE to foster data sharing and collaborative initiatives among public health entities. Military Treatment Facilities (MTFs), housed on DoD installations, provide healthcare to all service members and their beneficiaries stationed in the area.

June 18, 2019

Electronic case reporting of STIs: Are non-existent codes the reason for missing information?

Under the CDC STD Surveillance Network (SSuN) Part B grant, WA DOH is testing eICR of sexually transmitted infections (STI) with a clinical partner. Existing standard vocabulary codes were identified to represent previously-identified information gaps, or the need for new codes or concepts was identified.

Objective:

January 21, 2018

How do we present messy syndromic surveillance data to public health’s partners?

With increasing awareness of SyS systems, there has been a concurrent increase in demand for data from these systems – both from researchers and from the media. The opioid epidemic occurring in the United States has forced the SyS community to determine the best way to present these data in a way that makes sense while acknowledging the incompleteness and variability in how the data are collected at the hospital level and queried at the user level.

January 25, 2018

Data Sharing Among Three States in the BioSense Platform during the 2017 US Solar Eclipse

In 2016, the BioSense Platform for national syndromic surveillance made substantial enhancements including data processing changes, a national ESSENCE instance, and management tools to support diverse data sharing needs. On August 21, 2017, a total solar eclipse occurred over much of the United States. The event resulted in large gatherings over multiple days to areas in the Path of Totality (PoT). In the days leading up to the event, public health and emergency preparedness included syndromic surveillance in their monitoring plans.

January 25, 2018

Epi Archive: Automated Synthesis of Global Notifiable Disease Data

Most countries do not report national notifiable disease data in a machine-readable format. Data are often in the form of a file that contains text, tables and graphs summarizing weekly or monthly disease counts. This presents a problem when information is needed for more data intensive approaches to epidemiology, biosurveillance and public health. While most nations likely store incident data in a machine-readable format, governments are often hesitant to share data openly for a variety of reasons that include technical, political, economic, and motivational issues1.

January 25, 2018

Using Electronic Health Data for Community Health

A report jointly released by the de Beaumont Foundation and Johns Hopkins University, Using Electronic Health Data for Community Health: Example Cases and Legal Analysis provides public health departments with a framework that will allow them to request data from hospitals and health systems in order to move the needle on critical public health challenges.

January 02, 2018

Improving Public Health Preparedness: Strengthening Biosurveillance Systems for Enhanced Situational Awareness

This report is designed to aid state, territorial, tribal, and local public health leaders as they improve their capacity to achieve situational awareness during a public health emergency. We intend this report to serve as a concise reference work public health leaders can use to help design and manage biosurveillance systems to be used during an anticipated public health emergency.

September 06, 2017

Developing a Transdiciplinary Database Template for Operationalization of One Health Surveillance of Japanese Encephalitis and Other Vector Borne Diseases in India

Vector borne diseases like Japanese Encephalitis (JE) result from the convergence of multiple factors, including, but not limited to, human, animal, environmental, and economic and social determinants. Thus, to combat these problems, it is essential to have a systematic understanding of drivers and determinants based on a surveillance system that systematically gathers and analyzes data emanating from across multiple disciplines.

September 29, 2017

Exploring Research Opportunities Among the U.S. Census Bureau and Health Information Exchanges

On April 20, 2017, the U.S. Census Bureau hosted a meeting with approximately 20 representatives from the health data community. Attendees included representatives from health information exchanges (HIEs), state and local public health departments, health data associations, and the Department of Health & Human Services (see Appendix A for list of participants). The purpose of the meeting was to explore the potential for a joint Census-HIE initiative: specifically, data maintained at the Census Bureau would be matched to records maintained by HIEs.

May 30, 2017

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National Syndromic
Surveillance Program

Email:nssp@cdc.gov

The National Syndromic Surveillance Program (NSSP) is a collaboration among states and public health jurisdictions that contribute data to the BioSense Platform, public health practitioners who use local syndromic surveillance systems, Center for Disease Control and Prevention programs, other federal agencies, partner organizations, hospitals, healthcare professionals, and academic institutions.

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